I finally met with my endocrinologist (Dr Book) last week (it took almost 2 months to get in!) She has me taking lots and lots of vitamins, especially calcium and Vitamin D since my labs are still not up to par since the surgery. I bought $50 bucks worth of over the counter varieties of vitamins, like gummies, chewables and carmels (viativ) because I was getting sick of popping horse pills at every meal!
Dr Book seems very knowledgeable about my situation and we have a written out game plan of how we will deal with my thyroid issues from now on: during pregancy- blood tests every 4-6 weeks to monitor thyroid levels and appointments every 2-3 months. She feels it would be best for me to do the iodine radiation treatment after I'm done nursing baby #4. However, it is still our choice but I'm really feeling like it needs to be done. It just doesn't sound like a fun process....first you stop taking your thyroid medication for 3-5 weeks until you become sufficiently hypothyroid for the treatment. That alone will make me very tired and weak....which with 4 kids isn't great! Then they give me my radioactive iodine and with in a week I will have a body scan to locate any remaining thyroid tissue (cancerous or not). I will also have to isolate my self for a few days since I'll be radioactive :) Then I finally get to start taking my thyroid medication again but it can take another 5-7 week before my levels will be up to normal again. I will need to have a whole body scan every year since recurrence with my type of cancer (follicular variant of papillary cancer) is 25-35%
So there you have it!